Through MEDEloop' two-sided platform, we enable life science partners to generate real-world, longitudinal evidence and empower patients to participate in treatment research, whenever and wherever they are, while benefiting from their own medical data. On one side of the platform — after proper consent and authorization — patients and family members can contribute to research by sharing the wealth of data found in their medical records.

All patients (or parents/guardians of children, legal authorized representatives (LARs), including those of adults with diminished capacity) are welcome to join the MEDEloop platform, though at this time, only participants in the U.S. and Canada are eligible to consent to MEDEloop research. You will be invited by your physician to join.

Participants register an account and are asked to indicate where the patient has received care. The participant is asked to sign a release form that allows MEDEloop to request their complete medical records on their behalf. Records are digitized, de-identified (made anonymous to anyone viewing the data), organized and consolidated into the patient-facing application within the MEDEloop portal.  Eligible platform users also have the option to sign MEDEloop’s IRB-approved research consent. This consent allows de-identified data from the patient's medical records or survey responses to be used in research (identifiable data and medical records are not shared with researchers). MEDEloop applies world-class machine learning to the information to generate research insights that can be used by researchers to advance disease-specific understanding and accelerate treatment development timelines. Patients always have an “access log” within their app that enables them to view how their information is being used and by whom.

Patients always own their data. Patients who consent to research can opt out at any point. They may download their data to take with them or utilize in other settings, or for other purposes. If patients or caregivers consent to being involved in MEDEloop research, researchers will be able to access the de-identified data combined with data from other individuals with the same condition, and analyze that data set to look for insights and help advance treatment research.

Once collected, they are digitized and uploaded to a patient-friendly electronic portal, where patients and caregivers can access them securely or share them with their care team. The interactive portal also allows the MEDEloop research team to share research insights back to patients and collect additional data through surveys. On the other side of the platform, MEDEloop extracts the data, de-identifies it, and harmonizes it for research purposes. Research partners from academia, non-profit organizations and industry can request access to these audit-trailed data to support natural history studies, longitudinal outcome studies and regulatory inquiries and submissions.

MEDEloop is transforming how research is conducted for disease and is committed to accelerating treatment development for all patients. For Patients, MEDEloop makes it easy to contribute anonymized medical records to help advance research… wherever they are, for free.  For Research, MEDEloop is a game changing technology that accelerates research cycles and helps researchers publish more, faster. For the first time, researchers have access to harmonized data across phenotypic, genomic, wearables and nutrition; all with prior patient consent. With direct access to engage the patients, enrolling research studies, recontacting, and remote studies are now seamless processes.  For life sciences, MEDEloop provides access to natural histories, patient journeys, burdens of illness and patient engagement – all in one place. MEDEloop enables life sciences to screen possible trial participants, enroll directly and collect regulatory-grade data to optimize R&D.